Omaha Toddler Battles Rare Tumor




A follow-up on Chase Tiemann. The vibrant, happy toddler just went through surgery on a very rare tumor. After his story aired, more than three thousand of you joined his page to show support.

Chase Tiemann's dance moves captured his followers hearts on Facebook.

Jonell, Chase's mom, said, "People that don't even know us are taking Chase into their family and treating Chase like he's one of their own."

It's been a very tough journey for Chase and his family. At just three-years-old, he has already had three surgeries.

This time, he had a malignant tumor wrapped around his spine.

His doctor at Children's says the surgery could have potentially left his paralyzed.

"Once we saw him moving his arm and legs, he was really fighting!" said Jonell.

As Chase was going through his surgery, kind strangers began supporting him on Facebook. They sent Chase cards. One stranger asked the family twice if he could help. He ended up sending Chase a Kindle Fire and toys.

"A lot of people were really concerned on how the outcome was as much as us." said Jonell.

Chase did end up in the ICU after surgery. He was having trouble breathing, but again, he's a fighter. He is now back home.

"I know he missed being at home, sleeping in his own bed and seeing his brother and sister." said Jonell.

Right now, they are still waiting for test results to find out if all the cancer is gone. Jonell finds comfort knowing-no matter what Chase goes through-they won't be alone.

"A lot of people have said we're not going to stop following his page until he's all clear. I'm very thankful for that!"

Chase's family never asked for donations or toys. They simply asked people to follow his page.

So many requests have come in, Chase's grandma ended up setting up a page for donations.

The family says if people want to donate, every dollar will go to Chase.

They have also included their address on his page for those who would like to send cards!

June 16, 2014

He's a vibrant, happy three-year-old. Chase Tiemann is battling a very rare tumor. His family opens up to us just days before Chase heads back into surgery.

Chase Tiemann loves to "shake it!" Video-after video-shows it on his Facebook page.

Jonell Tiemann, Chase's mom says, "They love watching his video...they all get a kick out of it especially his dancing videos..."

But behind the dancing and smiles, Chase's first three years have come with major health struggles.

Chase's mother talked to his pediatrician.

"I said well Chase's case is very rare, more like on in a billion and he said even higher than that..." said Tiemann.

Jonell says it all started when Chase was one. She noticed he couldn't move one of his arms, something he still can't do today.

"If he notices something he can't do, he gets kind of frustrated and it's hard to watch." said Tiemann.

Doctors found a tumor, and removed it. It came back.


Now, a tumor is wrapped around his spinal cord. Dr. Mark Puccioni, Children's Hospital and Medical Center, says this one is a malignant neural sheath tumor.

Dr. Puccioni says Chase has plexiform neurofibroma, which is almost always a case of Neurofibromatosis. Chase's case is rare. He has Plexiform Neurofibroma, but not the latter.

Dr. Puccioni says they have to do two surgeries. The danger is if too much blood reaches Chase's spinal cord, he could become a paraplegic.

"If the worst does happen, what do you say to a 3-year-old. How am I going to explain that to him?" worries Jonell.

The family has hope Chase will come out of this surgery like he did on the first tumor they removed. As they go through this difficult time, they ask that you support them on their "Prayers for Chase" page.

"I think it just gives us more confidence that other people are backing us up. I've even had a lady from Australia who has been a very good supporter." said Jonell.

It gives them hope Chase will be back to dancing again...soon.

The family is not asking for any monetary donations--just support. You can follow Chase's journey at the link above.

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