Children’s Hospital & Medical Center joins with Midwest Heart Connection will observe Congenital Heart Disease Awareness Week Feb. 7 – 14.
Congenital heart disease, commonly referred to as CHD, affects 40,000 newborns in the United States each year. It is the most frequently occurring birth defect and is the leading cause of birth defect-related deaths.
Children’s and Midwest Heart Connection are hosting an evening of awareness and support on Thursday, Feb. 13. Families of children with congenital heart conditions will tour the hospital’s Cardiac Diagnostic Center beginning at 6 p.m. Following the open house, at 7 p.m., author Amanda Rose Adams and Children’s pediatric heart transplant coordinator Barb Roessner, PA-C, will speak in the hospital’s Glow Auditorium.
Adams is the author of the book, “Heart Warriors: A Family Faces Congenital Heart Disease.” She’s a “CHD mom” and a tireless advocate working to increase awareness, empower families, and target research dollars for congenital heart disease.
Roessner is a physician assistant with the infant and pediatric heart failure and transplantation program at Children’s Hospital & Medical Center. Children’s has performed four pediatric heart transplants since April 2013.
Also in observance of Congenital Heart Defect Awareness Week, Children’s is expanding its Beads of Courage program to include children with chronic conditions including serious congenital heart defects. The program expansion was generously supported by Midwest Heart Connection and the Midwest Lampworkers Guild.