May 24, 2013

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Reporter: WOWT Email

Heartland Man With Rare Disorder Gives Back

A Lincoln man who was born with Short Bowel Syndrome (SBS) has turned the tables on his rare condition, by helping others who suffer from the same disorder.

His name is Andy Jablonski. When he was born, he almost died.

"I'm a medical miracle is what it turned out to be," said Jablonski.

Now at 26, Jablonski has started the Short Bowel Syndrome Foundation, which helps educate people about the rare condition. It also provides networking opportunities for patients and their families, helping them gain access to information about SBS.

At the same time, he's also working with an east coast pharmaceutical company to market a drug (Gattex) designed, (and recently approved by the FDA,) to treat SBS patients.


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