A Fight For Food, A Fight To Survive

For the last few months Jamus Hovseth, 3, has only wanted to be one person.

"I can be Iron man," yells Jamus in excitement.

He is idolizing a super hero because underneath the costume is a feeding tube that reveals Jamus' reality.

He has a rare disease called FPIES (Food Protein Induced Enterocolitis Syndrome). It causes his body to reject most food proteins. So Jamus lives on a prescription formula, it's the only source of nutrients he is able to keep down.

Sometimes he eats the formula through the tube, other times he prefers just the powder.

But as he takes a taste of the powder, his cute little face crinkles up at the taste.

Eating habits in this home can be tough. His mother, Robyn Hovseth, does everything she can to make sure he doesn't feel different.

"I was sneaking my supper, and he came up to me and said, can I smell it mommy, I promise I won't touch it. And it's just really hard. I can't give him anything other than his powder," said tearful Robyn.

Since WOWT's first story, his family now has enough formula to get through June.

This has given them a bit more time, so their current mission is to bring back the old formula Neocate Junior.

The company that makes the formula, Nutricia, decided to change the ingredients and refuses to make the old product. Because of this, friends of Jamus have started a petition.

"We don't know if it will do anything but we are hoping," said Robyn.

Everyday is about finding a way to get his one source of food back.

"Lately he had been saying a lot, 'When I am five I am going to be able to eat that.' So we just say, 'that is what we are trying, that is what we are working for'," said Robyn.

And with each new signature, the family hopes change will spark.

That way he won't have to be Ironman anymore. He will just be Jamus Hovseth, full and happy.

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